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Last up-date: April 13, 2010 |
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| Diabetic Gastroparesis |
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Links
Links to Other Resources
Centre for Digestive Motility in Calgary, Alberta, Canada
Here you will find Canadian and US resources for:
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Accessing information related to enteral and parenteral nutrition (tube feedings);
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Associations to help with costs of enteral/parenteral/oral formulas and
prescription medications;
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Assistance with medical air travel;
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Accommodations for families in need of medical assistance;
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Links to other related non-profit groups;
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Professional GI group links
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On-line support
Information related to tube feedings and formulas:
Canadian:
Canadian Parenteral Enteral Nutrition Association
Capital Health’s (Edmonton) Home TPN Program
USA:
Learn about the Medicare Home Infusion Therapy Coverage Act of 2007
American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.)
National Home Infusion Association
Formula cost/coverage assistance
Assistance with prescription medication costs:
For people suffering more severe digestive motility diseases, most medications are prescribed “off-label”, therefore the cost of the prescription will not be covered under health insurance plans or provincial health care plans.
Under these circumstances, always call directly to the drug company for the medication you have been prescribed. Most pharmaceutical companies have a compassionate program where by you may apply to them for assistance with help to cover your prescription medication cost. Some other sources to try:
USA:
Partnership for Prescription Assistance
Children in need, medical grants:
Medical Air Travel, traveling with medical supplies: Information
Canadian Air Transport Security Authority
Transport Security Administration
Help with Medical Air Transfers:
Canada
USA
National Patient Travel Center
Medical Accommodations, when accessing medical care away from home:
Always try calling directly to the institution. They very often will have a listing of inexpensive accommodations located near their facility.
Canada
Ronald McDonald House of Canada
USA
Ronald McDonald House of Canada
National Association of National Hospitality Houses
Links to other non-profits (disorders which can overlap with gastrointestinal motility problems):
Allergies:
Auto-immune:
Autonomic dysfunction groups:
Chronic Fatigue Groups:
Hereditary disorders:
Other Digestive Disease Groups
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William Alford's site on information related to CIP and other intestinal dysmotilities
Metabolic:
Neurologies (infectious, inflammatory, auto-immune):
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In Group (Local, Canada, inflammatory neuropathies)
Other Groups:
Professional groups
American Neurogastroenterology & Motility Society
American Gastroenterlogical Association
North American Society of Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)
Canadian Association of Gastroenterology
American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.)
On-line patient support
Association for Gastrointestinal Motility Disorders
Patient support group for Enterra Therapy patients in the UK
